Schizophrenia Policy Action Network (SPAN) Privacy Policy
This site is provided by the Schizophrenia Policy Action Network (SPAN), IRS Application pending 501(c)(4) tax-exempt non-profit organization (Tax ID 99-2673665) headquartered in Maryland. This Privacy Policy applies to the personal data provided to SPAN when you browse this website, make a donation, register for an event, sign up for a newsletter or otherwise provide us with information via the website located at www.span-scz.org or any other domain names owned or controlled by SPAN (the “website”). It also applies to personal data you may provide to SPAN via telephone, email, regular mail, social media, texting or in response to personal solicitations.
SPAN respects the privacy of every visitor to our websites. Your privacy is a priority, and we go to great lengths to protect it. This Privacy Policy describes how we collect and use information about our online visitors. We will not collect any identifying or personal information about you while you are here except as set forth in this Privacy Policy.
EU and UK Residents: SPAN values the data protection principles established by the European Union’s (EU) General Data Protection Regulation and the Data Protection Act of 2018, including transparency and accountability, collecting data for legitimate, limited purposes, minimizing data collected, maintaining accurate data, maintaining data for reasonable periods and taking appropriate data security measures. However, SPAN has taken proactive steps to (a) avoid offering goods or services to EU and UK residents, (b) avoid soliciting donations from EU and UK residents and (c) avoid monitoring the behavior of EU and UK residents.
Minors: SPAN does not intend to collect personal information from children under age 13. While we encourage children to visit our site and learn more about our programs, children under age 13 are not authorized to make a donation or purchase, sign up for an event or program or otherwise provide any personally identifiable information without consent from a parent or legal guardian. We recommend that parents approve and closely supervise the activity of their children at this and all other online sites and discuss with their children the restrictions regarding the online release of personal information to anyone they don’t know.
The information SPAN collects
We respect your privacy as our online guest, and we will not collect any identifying or personal information about you while you are here except as set forth in this Privacy Policy.
Information You Provide Directly: SPAN collects information in several ways from different parts of this site. SPAN may collect personal information from you when you register with this site or sign up for a program, initiative or event. SPAN also may ask you for personal information at other times, such as when you ask a question, submit a comment or report a problem with this site. If you contact SPAN, SPAN may keep a record of that session or correspondence, including a record of your e-mail address. SPAN may also occasionally ask users to complete surveys for research purposes. There also may be services on this site that require you to fill out an online form or send SPAN an e-mail message to use these services. SPAN collects any information that you provide in such circumstances, including any personal information.
We may also ask you for identifying and personal information to:
- Inform you of new services, changes or promotions, directly or via a third-party advertising or social media network. For the purposes of improving the relevancy and targeting of marketing, the information collected may be provided to third-party advertising or social media networks to generate “lookalike” or custom audiences. This activity is governed by the network’s own privacy policy and terms and conditions.
- Invite you to receive periodic e-mail updates about our progress. When you accept, or “opt in,” we ask you to give us your e-mail address and respond to some questions that help us tailor our information to your interests. You can “opt out” of receiving these periodic updates at any time.
- Processing any online donations you make to SPAN. When you make an online donation, we ask you for your name, address, telephone number, email address and credit card information. When you donate to honor someone else, we do not use the information you give us about that person for any other purpose.
- Processing registration information for online sweepstakes or contests on the SPAN website. When you agree to give us identifying and personal information for online sweepstakes or contents, you are giving that information to SPAN in accordance with the applicable contest rules and the parties we have involved in operating this site. You are giving it solely to enable the services this site provides.
- Information we receive automatically when you use our services. SPAN also may collect visitor information through Google Analytics, including IP addresses, domain names and similar items regarding users of this site to measure the number of visits, pages visited, average time spent on this site and similar metrics. This information is typically retained for 38 months.
“Cookies” may be used in connection with this site. A cookie is a small amount of identifier data that is sent to your browser from a web server and stored on your computer’s hard drive. By using cookies, information is potentially collected without your express knowledge. Most browsers are initially set to accept cookies, but permit you to change the setting to refuse cookies or to be alerted when cookies are being sent. While refusal to accept cookies will not prevent the use of some portions of this site, other portions of this site may not function properly without cookies.
Generally, SPAN may use cookies and the information they provide to: (a) remind us of who you are; (b) access your account information to deliver to you better and more personalized service; (c) estimate our audience size; (d) determine the nature and extent of repeat usage; and (e) measure certain traffic patterns to understand how users’ habits are similar or different from one another, so that SPAN may improve our site. We also use many cookies on the SPAN.org domain for the purposes of traffic collection and analysis, third-party advertising modeling and remarketing and testing for conversion rate optimization.
How SPAN uses the information it collects
SPAN uses the information it collects through this site to improve its marketing and promotional efforts, improve its content and customize this site’s services, content and layout. SPAN may provide the information it collects through this site to third parties who provide services on SPAN’s behalf and with your permission, to SPAN’s business partners. SPAN may use the information it collects through this site to inform you of new services, changes or promotions. If you do not want us to send you this type of information, please let us know by contacting us at info@span-scz.org. We will not disclose your personal information collected through this site to third parties except as described in this Privacy Policy without first informing you of such change in our disclosure practices and providing you with a choice regarding such disclosure.
How SPAN shares the information it collects
SPAN understands the importance of privacy and confidentiality to users of this site. SPAN may provide the information it collects through this site to third parties who provide services on SPAN’s behalf and with your permission, to SPAN’s business partners. For example, we use one or more third-party financial institutions to process our credit card transactions. They receive the credit card number and other personal information of our donors only to verify credit card numbers and to process credit card transactions in a secure environment. We also occasionally hire other companies to perform limited services on our behalf. We only provide those companies with the information they need to deliver the service and prohibit them from using that information for any other purpose. Aggregated, de-personalized traffic data are shared with certain advertisers to optimize campaigns.
We respect our donors’ choices and control over their information. You, as a donor, may at any time have your name excluded from any donor list exchange activity. To ask that your name be excluded from list exchange activity or to otherwise change how SPAN contacts you, please email us at info@span-scz.org.
SPAN may disclose information it collects through this site when required to do so by a court, regulatory agency, subpoena, law, regulation or other body of competent jurisdiction and authority, and for administrative and other purposes that SPAN deems necessary to maintain, service and improve its products and services and to protect its rights and property. If you become involved in any violation of security, violation of this website’s Terms of Use or violation of any party’s or third party’s rights, SPAN may release information about you to assist in investigating, resolving or remediating any such incidents.
Integrity and security
Use of SSL and encryption. To enhance privacy and security, SPAN maintains a current Secure Socket Layer (SSL) Encryption Certificate on official SPAN sites that permit a donor or supporter to provide their personal data.
Restricting Who Has Access to Your Information. SPAN employs commercially reasonable managerial and technical measures to help protect the security and integrity of the personal information it collects online through this site. You acknowledge, however, that no data transmission over the internet can be guaranteed to be 100% secure. As a result, while SPAN strives to protect your personal information, SPAN cannot ensure the security of any information you transmit to or from this site.
What are my rights?
You always have a right to:
- Request access to your personal information.
- Review the personal information SPAN has collected about you through this site.
- Request information about how your specific data are being used.
- Opt out of communications from SPAN and/or request that we not share your information with other organizations.
- Request that your data be erased.
To make any of the requests above or if you have any other questions or complaints regarding SPAN privacy practices, please contact us at www.span-scz.org. Please include your full name, address, phone number and e-mail address in your opt-out request and indicate how you would like your information restricted.
Privacy practices of other sites
This Privacy Policy only addresses the use and disclosure of information SPAN collects online through this site, not information SPAN collects through other sources. For your convenience, this site may contain links, or addresses, that you can simply click to open other useful sites where we do not control the content or privacy policy. Carefully review the approach these sites take to your privacy before you use them or provide them with information.
We assume no liability for any unauthorized actions of third parties or accidental transmission errors that may disclose information about you, and SPAN is not responsible for these other sites’ privacy practices, which may be different from SPAN privacy practices.
Changes to this Privacy Policy
SPAN may revise this Privacy Policy at any time by updating this posting. Please consult this Privacy Policy regularly.
California Privacy Rights
If you are a resident of California, you may request or opt out of your personal information being shared with third parties. You also are entitled to request the following information, which we will provide to you free of charge:
- A list of the types of personal information we disclose to third parties for direct marketing purposes in the preceding calendar year.
- The names and addresses of all third parties that receive personal information in these categories from us in the preceding calendar year, and examples of the products or services marketed by these businesses: (a) name and address; (b) electronic mail address; (c) age or date of birth; (d) names of children; (e) electronic mail addresses of children; (f) number of children; (g) age or gender of children; (h) height; (i) weight; (j) race; (k) religion; (l) occupation; (m) telephone number; (n) education; (o) political party affiliation; (p) medical condition; (q) drugs, therapies or medical products or equipment used; (r) kind of product purchased, leased or rented by customer; (s) real property purchased, leased or rented; (t) the kind of service provided; (u) social security number; (v) bank account number; (w) credit card or debit card number; (x) payment history; and (y) information pertaining to assets, liabilities or credit worthiness.
Please direct your opt out request or request for these types of information to info@span-scz.org.
State registrations are pending at this time and will be available here when final.
